Special Education Programs
About Us
DANII Foundation - Supporting families with type ONE diabetes www.danii.org.au
Address
L1, 111 Wicks Road
NORTH RYDE NSW 2113 Australia
The DANII Foundation was formed in 2012 after the tragic unnecessary death of Type One Diabetic (T1D), Daniella Meads Barlow at the age of 17 as a result of nocturnal hypoglycaemia, Dead in Bed Syndrome (DBIS). DANII is Australia’s pre-eminent foundation for the prevention of life threatening Dead in Bed Syndrome (DIBS) and the only organisation dedicated solely to the improvement of the safety and quality of the lives of T1D’s. As a result of this focus DANII has established an Australia wide consumer campaign to make life-saving remote alert technology for T1D’s affordable and as a result reduce unnecessary complications and complex morbidity associated with poorly managed T1D. The Foundation’s vision, mission and values are:
The Mission of DANII Foundation:
• Australia’s pre-eminent foundation for the prevention of Dead in Bed syndrome.
• Founded in 2012, the DANII Foundation campaigns for affordable, life-saving alert technology for people with type 1 diabetes.
• We raise awareness of potentially fatal hyperglycaemia and hypoglycaemia.
• DANII Foundation continues to lobby for continuous glucose monitors and sensors to be subsidised by the Government.
• We work with researchers and academics to develop and introduce new technology.
Vision :A world where people with type 1 diabetes live without fear of never waking up.
Mission :To make affordable, life-saving alert technology a reality for people living with type ONE diabetes. To educate the wider public and advocate for the type ONE community.
Values :Innovative, compassionate, inspirational, caring, driven, brave.
Key Achievements of the DANII Foundation – EST 2012
Despite the age of the DANII Foundation the organisation has achieved a significant amount. The following is possible with exceptional fundraising and an ultra-lean office. In the last year the following has been achieved.
- Facilitated a process and subsidised over 120 people with type 1 diabetes to have access to a 2 week Continuous Glucose Monitor(CGM) trial (i.e. try before you buy). The cost to the DANII Foundation is in the order of $200,000. Currently there are 300 T1D’s on the waiting list to trial a CGM.
- Subsidised the purchase of 40 CGM’s for type 1 diabetes families to the amount of $51,600 in 2014-15
- Introduced the “Hypomon” alert technology to Australian families and provided subsidies to 50 families before the product was voluntarily recalled from the market due to a lack of funding from the Parent Company.
- Introduced “Nightscout”, aka, “CGM in the Cloud” to Australia after contacting US Developer. Nightscout is a DIY system which allows real time access to a Dexcom G4 and Medtronic Mini- Med Veo Continuous Glucose Monitor (CGM) reading data from web browsers via smartphones, computers, tablets and the Pebble smartwatch. DANII delivered “Nightscout” at the 2015 Jelly Bean Ball. The development of this app cost in the order of $30,000. It is currently and will continue to be provided free of charge, regardless of funding arrangements. Nightscout is available to all CGM manufacturers. Nightscout was launched in August 2014 and in 15 months already has 15,000 subscribers.
- Introduced an in-school Education program in NSW educating children and the teaching staff on “What is type ONE diabetes and how to manage it. This is capable of being rolled out nationally.
- Established an annual educational “Jelly Bean” cruise for people with type 1 diabetes and their carers. In just 3 years, have provided education to 600 parents and children and have offered scholarships for 95 disadvantaged families to attend and learn about the latest technologies in a relaxed, fun environment. This cost the foundation in the order of the order of $110,000.
Quick Facts About The Region
Extra Information
Wheelchair Access No
Accessible By Anyone
Access Fee No fee
Age Ranges All ages
Other Requirements type ONE diabetes